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How friendly the
Scots are! This became apparent at the Strathclyde Lupus Group
'Meet and Greet' session on Saturday, 10th May.
The following day delegates were seated in a huge airy
conference room at round tables. This was conducive to meeting
new people and finding out how they experienced lupus.
Jane Atkinson, the chair of the local group, began by welcoming
everyone to Glasgow. She was followed by Dr Asad Zoma. He is
part of a world wide team of people doing collaborative research
which began in 2000. The purpose of this work is to test people
newly diagnosed with lupus and make a register of
atherosclerosis. Work has also been in progress since the 1980s
to develop international measures looking at the levels of lupus
activity, damage to the body and the quality of life of those
with the illness. A new measure of quality of life is now being
developed which will be interesting. It is very cheering to
learn that there is an international team working hard on our
behalf.
After a coffee break, a very jolly and dynamic Prof. Naveed
Sattar gave a Talk entitled, 'Lupus and Coronary Heart Disease;
what is the risk and what can we do about it?' This tied in well
with Dr Zoma's work. He gave the very clear message that those
with SLE are more than twice as likely to have a heart attack.
The other risk factors are age, smoking, gender, diabetes, high
blood fat (cholesterol) and high blood pressure. Other factors
are weight, social class and South Asian background. Things we
can be responsible for to lessen risk are; don't smoke; stay
active and avoid weight gain. From the medics we need aggressive
treatments to dampen down the lupus disease activity and, if
necessary, for high cholesterol, take cholesterol lowering
drugs. Prof. Sattar recommended that everyone over 40 should ask
their GP to assess their heart disease risk.
The LUPUS UK AGM then took place with Reports from the Chair,
Director and Treasurer. The Minutes of the 2007 AGM were agreed
and a vote was taken on amendments to the Constitution, this,
too, being agreed.
The afternoon session was opened by Frances Curran, National
Patron, who was followed by Dr. Max Field.
Dr. Field’s Talk asked, ‘What do Lupus Nurses do and what would
you like them to do?’ During the Talk, delegates were asked to
complete a short questionnaire. This was another good way of not
only finding information which Dr. Field requested, but, also,
encouraging the delegates to share their thoughts and ideas on
what they expect from a Lupus Nurse.
The day was rounded off by an excellent Gaelic Band and the
raffle draw.
Congratulations go to the National Office Team and the
Strathclyde Lupus Group for organising a really good National
Convention.
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